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Association of Paediatric Palliative Medicine (APPM) and British Inherited Metabolic Disease Group (BIMDG)

Time slot
Monday 11 May 2026 - 13:45-16:00
Room
Hall 8A
Session type
Specialty group session

Programme

From physiology to philosophy: Integrating palliative wisdom in metabolic disorders

Overview of metabolic disorders with progressive encephalopathy - Dr Shona Brothwell, Consultant in paediatric inherited metabolic disorders, Birmingham Women's and Children's Hospital

A joint approach to managing metabolic patients when there is no cure 

Ethical dilemmas in managing incurable metabolic conditions. 

Abstracts

  • Infants, children, and young people with life-limiting conditions: Learning from child death reviews on palliative and end of life care provision - An NCMD report
  • X-linked adrenoleukodystrophy: Have you seen this condition before, Doctor?
  • Adult team presence in paediatric appointments improves transition in children with inborn errors of metabolism

Speakers

  • Dr Gillian Hughes - Consultant, Evelina London
  • Dr Srividya Sreekantam - Consultant, Birmingham Children's Hospital
  • Dr Shona Brothwell - Consultant, Birmingham Children's Hospital
  • Dr Yigan Liang - Consultant, Birmingham Children's Hospital
  • Dr Joanna Laddie - Consultant, Evelina London
Clinical: Sub-specialty